An open letter to the U.S. Congress

Request for Urgent Support of Long Covid Patients

184 so far! Let’s get to 250 signers!

I am writing on behalf of tens of thousands of Americans who have contracted Covid-19 and have experienced symptoms for longer than the typical two week period quoted by the medical community. These citizens feel largely abandoned in their struggles, with lack of research being conducted, and lack of acknowledgement from the medical community-- both in the overall silence on this issue as well as personal experiences with their own doctors writing off their symptoms as anxiety and/or denying further testing and access to specialists to provide insight to the causes and possible remedies. It is estimated that between 10-30% of patients will experience the “long-tail” form of Covid-19. With 200,000+ Americans testing positive daily nationwide, this will likely result in tens of thousands of Americans who will suffer from severe and debilitating symptoms, many for 3 months or more, despite not requiring hospitalization for their initial infection. This will have an enormous effect not only on these citizens’ lives and quality of life for them and their families, but also on the economy, our healthcare system, the workforce, and our communities. We are demanding more focus from the government to address the poor health of hundreds of thousands of its citizens. It is imperative these suffers are given the support they need. Ways this can be addressed are the following: 1. Research into long-term Covid-19 disease in order to examine its causes and identify treatment 2. Post-covid clinics at major medical centers, with an interdisciplinary model, as Covid-19 is a multi-system disease 3. CDC created guidelines and training for PCPs to avoid further overburdening emergency rooms and hospitals with complications that could be treated on an outpatient basis 4. A nationwide provisional guide for long-term sick leave, financial support, and employer guidance to ensure awareness of this situation I must also stress that due to testing inaccessibility and inaccuracy, a positive Covid-19 test should not be required for care, leave, participation in research, and treatment, nor any other resources created to address this cohort of patients. Testing availability remains limited, and neither PCR testing nor antibody testing has proven to be sufficiently accurate to detect all or nearly all cases.

First sent on July 20, 2020 by Laura

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