1. United States
  2. N.C.
  3. Letter

Stop RFK from accessing private medical information from people with Autism

To: Rep. Hudson, Sen. Budd, Sen. Tillis

From: A constituent in Burlington, NC

April 22, 2025

The potential access to comprehensive medical data raises significant privacy concerns, particularly for vulnerable communities like those on the autism spectrum. Amassing private health records without explicit consent from individuals could enable unwarranted surveillance and bias. Rather than pursuing a centralized data repository, efforts should focus on ethical research practices that respect patient autonomy and civil liberties. Valuable insights can be gained through voluntary participation and robust privacy safeguards. I urge a reconsideration of this sweeping data collection in favor of an approach aligned with medical ethics and individual rights over one's personal information.

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