Resistbot
  1. United States
  2. Va.
  3. Letter

Protect Autistic Privacy in NIH Data Project

To: Sen. Kaine, Sen. Warner, Rep. Beyer

From: A constituent in Arlington, VA

April 23

As a constituent and mental health professional, I’m extremely concerned about the NIH’s new autism data registry, which may collect private medical, genomic, and wearable device data without clear consent. I respectfully urge you to: Support data privacy protections Demand transparency about how this data will be used Ensure autistic voices are included in the decision-making process This initiative must prioritize upholding HIPAA, ethics, and inclusion. Thank you for your attention to this matter.

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