- United States
- Fla.
- Letter
No centralized autism registry should be established, as it would violate the privacy rights of individuals and their families. The unprecedented collection and compilation of private medical data from various federal agencies, commercial databases, and even wearable devices raises serious privacy concerns. While studying autism is important, it cannot come at the cost of undermining personal medical confidentiality on a mass scale. Healthcare information is highly sensitive and must be safeguarded. Individual consent should be obtained before any personal data is shared for research purposes. The proposed real-time health monitoring system also sets a troubling precedent of government surveillance over citizens' personal lives. I urge you to reconsider this misguided initiative and prioritize protecting people's fundamental right to privacy over invasive data gathering practices.