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Stop the creation of an HHS autism registry.

To: Rep. Goldman, Sen. Cruz, Sen. Cornyn

From: A verified voter in Fort Worth, TX

April 22

The administration's proposal to create a registry tracking autistic individuals using private medical data is extremely concerning and raises significant privacy issues. Such a database would require accessing sensitive personal information without consent, potentially violating HIPAA protections and civil liberties. There are valid concerns that this registry could be misused to discriminate against or marginalize the autism community. Before proceeding, the administration should thoroughly examine the ethics, legality, and practical implications of compiling this type of personal health data. Rigorous safeguards and public oversight mechanisms would need to be implemented to prevent abuse and protect vulnerable populations. I urge you to critically evaluate this proposal, listen to stakeholders like autism advocacy groups, and consider less invasive alternatives that respect privacy rights.

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