1. United States
2. Colo.
3. Letter

Dear Members of Congress, I am the mother of a neurodivergent daughter. She is not broken, not lost, and certainly not something to be “tracked” in a registry. RFK Jr.’s proposed autism registry is not about supporting those like my daughter. It is a deeply concerning proposal that threatens privacy rights, raises serious health implications, and creates a surveillance system that dehumanizes, reduces people to data points, and undermines the dignity of individuals with autism and their families. This registry proposal poses a grave risk to privacy protections by enabling the collection of sensitive personal data without consent, placing neurodivergent individuals—particularly children—at risk of unwanted exposure and misuse of their medical and psychological information. Moreover, it invites a false narrative that neurodivergence is something to be tracked, fixed, or categorized rather than embraced and supported. Autistic individuals deserve respect, privacy, and care, not a system that treats them as statistics. Autism is a difference, not a deficiency. We must stop being afraid of differences. We must ensure that health policies prioritize care and support over surveillance and control. I urge you to reject any legislative efforts to create a national autism registry. This is not just about autism—it’s about protecting the privacy and rights of all citizens from overreach and surveillance that strips away dignity. Please take immediate action to oppose this registry and ensure that neurodivergent individuals are seen for who they truly are—whole and worthy of respect. Thank you for your attention to this urgent matter.