1. United States
  2. Calif.
  3. Letter

Safeguard patient privacy in Kennedy's autism data collection

To: Sen. Padilla, Rep. Mullin, Sen. Schiff

From: A constituent in Redwood City, CA

April 24

The indiscriminate consolidation of Americans' private medical records for Kennedy's autism study tramples patient privacy rights and cannot be permitted without robust safeguards. Amassing intimate health data from disparate sources like federal agencies, insurers, and commercial entities is an astonishing overreach that discards patient consent and confidentiality. This reckless data dragnet demands transparency, stringent ethical oversight, and iron-clad protections to prevent misuse or breaches that could grievously violate the public's trust. I insist you suspend this brazen disregard for individual privacy until obtaining explicit consent from each person whose records you seek. Pursuing vital research does not absolve the unconscionable erosion of personal privacy protections on a massive scale for a single objective. Uphold fundamental civil liberties and enact comprehensive privacy rules before advancing this unconstitutional data grab that threatens millions.

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