1. United States
  2. Texas
  3. Letter

Reconsider autism study data collection plan safeguarding privacy rights

To: Rep. Williams, Sen. Cornyn, Sen. Cruz

From: A verified voter in Arlington, TX

April 22

Allowing the indiscriminate compilation of Americans' private medical records for a study on autism, without proper consent or oversight, represents a flagrant violation of HIPAA privacy laws. This unethical data collection disregards citizens' fundamental right to confidentiality over their personal health information. Immediate action is needed to protect individuals' privacy and enforce existing regulations around protected health data. Failure to intervene risks setting a dangerous precedent that could enable further erosion of medical privacy rights.

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