An open letter to the U.S. Congress

Safeguard autonomy of autistic individuals, no invasive data collection

2 so far! Help us get to 5 signers!

The proposed national autism registry raises concerns about potential ulterior motives behind its creation and operation, beyond the stated aims. This centralized database of private medical data, overseen by an individual who has promoted controversial and unsubstantiated theories about autism, could enable misuse of sensitive information in ways that infringe on the rights and autonomy of the autism community. Rather than empowering autistic individuals through ethical research and evidence-based support, such a registry controlled by those with a pre-existing agenda risks undermining trust and causing unintended harm. It is imperative to critically examine the justifications and potential consequences of this endeavor to ensure it genuinely serves the interests of the autism community without exploitation or discrimination.

▶ Created on April 24 by Gray

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